The National Children’s Study (NCS) will host “National Children’s Study Research Day: Come Learn, Collaborate and Innovate with Us!” on Wednesday, Aug. 24 to share NCS research initiatives and identify opportunities to collaborate
and innovate with the broader research community.
The NCS is a multi-site, 21-year observational study. Its goal is to improve children’s
health by collecting high-quality data on genetic and environmental factors
that may influence health outcomes. It is being implemented as two separate
but related long-term studies due to its complexity. The first study, a pilot or Vanguard Study, began in 2009 to evaluate the feasibility, acceptability and cost of participant recruitment and retention. It also examines data collection and operations. The Main Study focuses on exposure and response and will observe children from birth through age 21 based on the most optimal approaches identified
in the Vanguard Study.
NCS Research Day will bring together NCS scientists, the NIH research community
other federal agencies and partners. The NCS will share data and lessons learned up to this point and facilitate collaboration with innovators who attend.
“What makes the NCS unique is that the Vanguard Study serves as a test bed, where multiple scientific methodologies, tools and technology platforms for data collection will be selected and systematically evaluated,” said Capt. Steven Hirschfeld, acting NCS director. “We want to share our research so we can identify
linkages with other programs here at NIH and government-wide.”
NCS Research Day is about more than just child health research. “We are interested
in bringing together basic and clinical researchers from multiple scientific areas, as well as those working to [provide innovations in] research informatics, operations, regulatory processes and community engagement,” said Hirschfeld.
The meeting will include many topics such as feasibility studies of whole genome sequencing of NCS families, new data collection methods, integrated terminology,
new objective assessments of health across the life course, innovative technologies
and informatics approaches, sampling results and health disparities insights.
NCS Research Day will be held in Natcher Auditorium. Data will be presented in a plenary session that will be available on NIH Videocast. Posters will be on exhibit in the Natcher atrium throughout the day.
All are welcome to attend this free event. Registration and more information are available at http://www.nationalchildrensstudy.gov/newsandevents/events/Pages/ncsresearchday.aspx.