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August 12, 2016
NIAMS Roundtable Focuses on Ichthyosis Research
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PHOTO: ELIZABETH BOURAS

NIH-supported basic, translational and clinical researchers recently met with NIAMS leadership and staff to discuss research gaps and unmet needs related to ichthyoses, a group of genetic skin disorders. The meeting also included representatives from other ICs, the Food and Drug Administration, a patient advocacy organization and industry. The full-day roundtable informs the institute’s scientific planning process. The group addressed topics including ichthyosis course and co-morbidities; disease pathogenesis; outcome measures to gauge disease severity; new therapeutics; and how best to engage new investigators, patients and patient advocacy organizations in ichthyosis research.

Participants included NIAMS director Dr. Stephen Katz (seated, third from r), deputy director Dr. Robert Carter (seated, second from r), director of the Division of Skin and Rheumatic Diseases Dr. Susana Serrate-Sztein (back, second from r), and staff members Drs. Carl Baker (seated, l) and Ricardo Cibotti (back, third from r). The meeting was co-chaired by Katz along with NIAMS grantees Drs. Amy Paller (seated, third from l) and Keith Choate (seated, second from l).

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