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January 27, 2017
Briefs
Town Hall Meeting on OM Relocation

NIH staff are invited to OM on the Move All Hands, a town hall style meeting on Tuesday, Jan. 31 from 2 to 3 p.m. at 6001 Executive Blvd. (Neuroscience Center Bldg.), Rm. C, on the relocation of off-campus staff in the NIH Office of Management (OM) to Rockledge I and II in 2019. The move will co-locate staff from several institutes and centers in a campus style location with reconfigured work spaces for a more open environment.

To attend the meeting in person, send an RSVP to OMontheMove@mail.nih.gov and bring your NIH ID to the event. To participate remotely, go to https://videocast.nih.gov to watch the live videocast. Questions and comments about the move may be sent before, during and after the meeting to OMontheMove@mail.nih.gov. Sign language interpreting services will be provided. For more information about OM on the Move, visit https://omoffice.od.nih.gov/programs/move.

NIH To Host Rare Disease Day Event, Feb. 27

Rare diseases affect an estimated 25 million Americans. On Feb. 27, NIH will host an event to raise awareness about rare diseases, the people they affect and current NIH research collaborations.

Sponsored by the National Center for Advancing Translational Sciences and the Clinical Center, Rare Disease Day at NIH will take place from 8:30 a.m. to 4 p.m. in Masur Auditorium, Bldg. 10. The event will feature presentations, posters and exhibits, tours of the Clinical Center and an art show. Admission is free and open to the public. In association with Global Genes, participants are encouraged to wear their favorite pair of jeans.

Learn more about Rare Disease Day at NIH at https://ncats.nih.gov/rdd, visit https://events-support.com/events/NIH_Rare_Disease_Day to register and view the agenda and follow the event on social media at #RDDNIH.

Sen. Nelson Visits NIH for ALS Update

Sen. Bill Nelson (D-FL) spent the afternoon of Nov. 28 at NIH, getting an overview of research on amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) from intramural experts in the field. Above, NIH director Dr. Francis Collins (l) greets Nelson, along with NIA director Dr. Richard Hodes (third from l) and NINDS director Dr. Walter Koroshetz. Dr. Bryan Traynor (l), senior investigator and chief of the neuromuscular diseases research section in the NINDS Laboratory of Neurogenetics, briefs the senator on research progress and techniques. Nelson chairs the Senate’s special committee on aging and was a crewmember on the 24th flight of the Space Shuttle Columbia, which took place Jan. 12-18, 1986.
Sen. Bill Nelson (D-FL) spent the afternoon of Nov. 28 at NIH, getting an overview of research on amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) from intramural experts in the field. Above, NIH director Dr. Francis Collins (l) greets Nelson, along with NIA director Dr. Richard Hodes (third from l) and NINDS director Dr. Walter Koroshetz. At right, Dr. Bryan Traynor (l), senior investigator and chief of the neuromuscular diseases research section in the NINDS Laboratory of Neurogenetics, briefs the senator on research progress and techniques. Nelson chairs the Senate’s special committee on aging and was a crewmember on the 24th flight of the Space Shuttle Columbia, which took place Jan. 12-18, 1986.

PHOTOS: ERNIE BRANSON

Credit Union Raises Funds for NIH Charities

By donating $25 for every auto loan its members originated with them in October-December 2016, the NIH Federal Credit Union recently provided $8,500 to the NIH Charities.

At check presentation are (from l) Randy Schools; Cassandra Hairston, NIHFCU; Heidi Grolig, Friends of Patients at the NIH; Steven Levin, NIHFCU; Jennie Lucca, CEO, Children’s Inn at NIH; Roger Bordine, representing Special Love; Rick Wieczorek, NIHFCU president & CEO. Seated is Zilly, inn therapy dog.
At check presentation are (from l) Randy Schools; Cassandra Hairston, NIHFCU; Heidi Grolig, Friends of Patients at the NIH; Steven Levin, NIHFCU; Jennie Lucca, CEO, Children’s Inn at NIH; Roger Bordine, representing Special Love; Rick Wieczorek, NIHFCU president & CEO. Seated is Zilly, inn therapy dog.

The donation will be split evenly among the Children’s Inn at NIH, Friends of Patients at the NIH and Special Love. Funds will go directly to helping each organization fulfill its goal of supporting patients and families struggling with the life-altering impact of significant illness and treatments.

“The NIHFCU is thrilled to give back to the NIH community which, since 1940, has provided us with the privilege of serving their dedicated workforce,” said Steven Levin, NIHFCU’s vice president of marketing & business development. “Whether our donation helps to send young cancer patients to summer camp, delivers some financial relief for distressed families at the NIH for long-term stays, or contributes to providing a safe haven for ill children in between their NIH treatments and hospitalization, the NIHFCU is honored to support the incredible missions of these three fine organizations.”

“The NIHFCU is an integral part of the NIH community and the NIH Charities cannot thank them enough for their generosity,” said Randy Schools, NIH Charities founding board member and trustee. “This gift, along with the other financial and in-kind support the credit union has provided throughout the years, has truly made a difference in the lives of thousands of patients and families who are faced with extreme medical circumstances.”

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