NIH Record - National Institutes of Health

Have Pentalogy of Cantrell?

NHLBI seeks patients with pentalogy of Cantrell and their family members to join a study. Doctors want to learn if there is a genetic cause of this rare disorder. You will have a sample (usually saliva) collected for genetic testing and whole exome sequencing and a review of your medical records. There is no charge for study-related tests. Travel to NIH is not required. For more information, call 1-866-444-2214 (TTY 1-866-411-1010). Visit Clinicaltrials.gov and refer to study 04-H-0202. 

VRC Recruits Healthy Volunteers

Vaccine Research Center researchers seek healthy volunteers, 18-50 years old, for a study evaluating an investigational vaccine that targets HIV. Compensation is provided. There is no risk of infection. To learn how to participate, call 1-866-833-5433, email vaccines@nih.gov or visit http://bit.ly/VRC-018

Patients with Fanconi Anemia Needed

NHLBI researchers need volunteers at least 4 years old with Fanconi anemia to participate in a study investigating a treatment to improve blood counts. Compensation for travel is provided. Study-related tests are provided at no cost and results are shared with you and your doctor. Call 1-866-444-2214 (TTY 1-866-411-1010). Read more at https://go.usa.gov/xQyKp. Refer to study 17-H-0121. Se habla Español. 

Volunteers with Leukemia Sought

NHLBI researchers need volunteers with CLL (chronic lymphocytic leukemia) or small lymphocytic lymphoma (SLL) for a new investigational treatment study. Researchers are adding pembrolizumab (an immunotherapy agent) to standard treatment. If you have received treatment for CLL and progressed or have high-risk genetic changes such as deletion 17p, TP53 mutation, NOTCH1 mutation or complex cytogenics, you may be interested in participating. To learn more, call 1-866-444-2214 (TTY 1-866-411-1010). Read more online at https://go.usa.gov/xnYae. Refer to study 17-H-0118.

Study Needs Healthy Volunteers

NINDS researchers seek healthy volunteers for an outpatient research study. The purpose of this study is to understand more about how the brain controls motor function. Volunteers may receive brain, skin and nerve stimulation and may perform tests of hand movement, behavior and learning (some tests may be done during an MRI scan of the brain). Volunteers may be scheduled for between 1-20 sessions. Sessions will be of various durations, lasting up to 8 hours each. There is no cost for research-related procedures or participation. Compensation is provided. For more information, call 1-866-444-2214 (TTY users call via MD Relay 7-1-1) or email prpl@cc.nih.gov. Refer to study 07-N-0122. Read more at https://go.usa.gov/xPRWT.

The NIH Record

The NIH Record, founded in 1949, is the biweekly newsletter for employees of the National Institutes of Health.

Published 25 times each year, it comes out on payday Fridays.

Associate Editor: Dana Talesnik
Dana.Talesnik@nih.gov (link sends e-mail)

Assistant Editor: Eric Bock
Eric.Bock@nih.gov (link sends e-mail)

Staff Writer: Amber Snyder
Amber.Snyder@nih.gov (link sends e-mail)