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NIH Record - National Institutes of Health

‘NCATS Day’ Explores Responsible Data-Sharing, Dec. 17

Three participants in NCATS Day 2008 gather in front of projected slide announcing the event.

NCATS Day 2018

Each year during NCATS Day, the National Center for Advancing Translational Sciences shines a spotlight on an important aspect of translational science and provides a forum to share and address patient and research community needs. NCATS Day 2019 presents “Conversations on Responsible Sharing of Data.” The event will take place from 8:30 a.m. to 4:30 p.m. on Tuesday, Dec. 17 in Natcher Conference Center.

This year’s discussion will examine data-sharing from the perspectives of the research participant, community, scientist, federal funder and industry. Central to data-sharing is the recognized need for broad availability while ensuring the confidentiality and autonomy of research participants. The event will feature an interview with NCATS director Dr. Christopher Austin and a panel discussion of case studies that introduce issues such as where data is shared, how it’s accessed and by whom, what it’s used for and how it’s returned to research participants. Meeting participants will have an opportunity to delve more deeply into the varied perspectives on data-sharing and usage through breakout discussions.

To register and learn more, visit https://ncats.nih.gov/events.

The NIH Record

The NIH Record, founded in 1949, is the biweekly newsletter for employees of the National Institutes of Health.

Published 25 times each year, it comes out on payday Fridays.

Associate Editor: Carla Garnett
Carla.Garnett@nih.gov

Staff Writers:

Eric Bock
Eric.Bock@nih.gov

Dana Talesnik
Dana.Talesnik@nih.gov

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