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NIH Record - National Institutes of Health

Rare Disease Day Scheduled for Feb. 29

Rare Disease Day event flyer graphic of several people in event logo T-shirts. Event Date Feb. 29 overlaid.

Rare Disease Day at NIH will take place on Thursday, Feb. 29 from 9 a.m. to 5 p.m. ET in the Natcher Conference Center. 

Each year, this NIH-wide event convenes people with rare diseases and their families, patient advocates, caregivers, researchers and clinicians for a day of presentations, personal stories and panel discussions. Topics this year will include reducing the lengthy diagnostic journey for people with rare diseases; advances in gene therapy; drug repurposing; and the role of artificial intelligence and organ-on-a-chip models to develop rare disease therapeutics.

To view the agenda and register, see https://go.nih.gov/8WBaPqN

For those who wish to view the sessions remotely, the event will be livestreamed and available on archive through NIH videocast.

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