NIH Record - National Institutes of Health

Rare Disease Day Scheduled for Feb. 29

Rare Disease Day event flyer graphic of several people in event logo T-shirts. Event Date Feb. 29 overlaid.

Rare Disease Day at NIH will take place on Thursday, Feb. 29 from 9 a.m. to 5 p.m. ET in the Natcher Conference Center. 

Each year, this NIH-wide event convenes people with rare diseases and their families, patient advocates, caregivers, researchers and clinicians for a day of presentations, personal stories and panel discussions. Topics this year will include reducing the lengthy diagnostic journey for people with rare diseases; advances in gene therapy; drug repurposing; and the role of artificial intelligence and organ-on-a-chip models to develop rare disease therapeutics.

To view the agenda and register, see

For those who wish to view the sessions remotely, the event will be livestreamed and available on archive through NIH videocast.

The NIH Record

The NIH Record, founded in 1949, is the biweekly newsletter for employees of the National Institutes of Health.

Published 25 times each year, it comes out on payday Fridays.

Assistant Editor: Eric Bock (link sends e-mail)

Staff Writer: Amber Snyder (link sends e-mail)