Data-Sharing Seminar Explores Opportunities to Advance Pediatric Cancer Research
Johanna Goderre will speak at the next Data Sharing and Reuse Seminar on Friday, Dec. 13, from 12:00 p.m. – 1 p.m., ET.
NIH’s Office of Data Science Strategy (ODSS) hosts this series to highlight exemplars of data sharing and reuse on the second Friday of each month. The series highlights researchers who have taken existing data and found clever ways to reuse the data or generate new findings.
Goderre will present, “Opportunities to Advance Research for Children, Adolescents and Young Adults with Cancer through Secondary Data Sharing in the New National Childhood Cancer Registry Data Platforms.”
NCI has been working with central cancer registries, medical and pharmacy claims processors, and healthcare providers like children’s hospitals, NCI-supported Cancer Centers, and radiation oncology providers through the National Childhood Cancer Registry. The new data platform combines population-based cancer registry and real-world data across the cancer care continuum and into survivorship for secondary data analysis by all kinds of researchers, including students. It will improve researchers’ ability to accelerate scientific understanding of cancer in children, adolescents and young adults.
Goderre is the technical lead for the National Childhood Cancer Registry—a groundbreaking platform that addresses infrastructure gaps by increasing accessibility, sharing and reuse of data.
Goderre holds an MPH and GIS certification with more than 20 years of experience in health research and evaluation, public health informatics and health systems delivery. She draws from her experiences to deliver high-quality data and bioinformatics IT systems for state and federal governments.
The series is open to the public; registration is required. For more information, including how to register, visit: go.nih.gov/kSJr9NH.