NIH Record - National Institutes of Health

NIH To Host Rare Disease Day Event, Twitter Chat

Rare Disease Day at NIH - March 1, 2018 #RDDNIH
Rare Disease Day promotional banner

Rare diseases affect an estimated 25 million Americans. On Mar. 1, NIH will host an event to raise awareness about these disorders, the people they affect and current research collaborations.

Sponsored by the National Center for Advancing Translational Sciences and the Clinical Center, Rare Disease Day at NIH will take place from 8:30 a.m. to 4 p.m. in Masur Auditorium, Bldg. 10. The event will feature presentations, interactive panel discussions, posters, exhibits and tours of the Clinical Center. Admission is free and open to the public. In association with Global Genes, participants are encouraged to wear their favorite pair of jeans.

Learn more about Rare Disease Day at NIH at Visit to register and view the agenda. Be sure to follow the event on social media at #RDDNIH. 

Prior to the event, NIH is hosting a Twitter chat on rare diseases on Friday, Feb. 23 from 1 to 2 p.m. The chat will feature NIH director Dr. Francis Collins and NCATS director Dr. Christopher Austin as well as representatives from the rare diseases advocacy community. Join in the conversation via #NIHChat.

The NIH Record

The NIH Record, founded in 1949, is the biweekly newsletter for employees of the National Institutes of Health.

Published 25 times each year, it comes out on payday Fridays.

Assistant Editor: Eric Bock (link sends e-mail)

Staff Writer: Amber Snyder (link sends e-mail)