August 5, 2022

Three Young Siblings Participate in First-in-Human Gene Therapy Trial
By Dana Talesnik
Two years ago, the Flysjo family came to the Clinical Center for an experimental treatment for their 3 children who have an ultra-rare disease that's fatal in childhood. Coming from Sweden just as the Covid-19 pandemic erupted, they arrived in the U.S. just under the wire, and recently returned for a follow-up visit.

Costs of Long Covid Becoming Clear
By Eric Bock
The toll of Covid-19 hospitalizations and deaths is just the tip of the iceberg, warned Dr. Ziyad Al-Aly during a Covid-19 scientific interest group lecture. The consequences of the infectious disease’s long-term effects lie just below the surface. “We need to focus on the long haul and what’s beneath that tip,” he said.
Former Intern Graduates to Pro Gridiron Career
By Carla Garnett
NIH trainees usually rise to success, but Zion Johnson took it to a new level. The Los Angeles Chargers selected the former NIH Pathways intern and First Team All-American offensive lineman as their first round pick in the 2022 National Football League draft.
Researchers with Disabilities Discuss Work Experiences
By Eddie Yago
From “living with disabilities” to “thriving with disabilities,” a paradigm shift in people’s perspective of disability doesn’t come easy. It starts with sharing experiences. Scientists discussed the joys and challenges of disability during a diversity & inclusion panel.