Rare Disease Day Returns

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NIH’s National Center for Advancing Translational Sciences will host Rare Disease Day at NIH on Friday, Feb. 27, from 9 a.m. to 5 p.m. EST. The hybrid event welcomes patients, caregivers, advocates, researchers, clinicians and industry and government representatives to the Natcher Conference Center. The day’s sessions will also be streamed on NIH videocast.

This year’s agenda features three panel sessions exploring cutting-edge approaches to rare disease research and treatment. Throughout the day, patients and advocates will share their experiences living with rare diseases. These stories offer firsthand insights into the daily realities of navigating complex medical systems, driving research forward and maintaining hope amid uncertainty.

The event also features exhibits, scientific posters and an art exhibition during networking breaks. An unveiling of a “Beyond the Diagnosis” portrait will take place in the morning, showcasing artistic representations of rare disease experiences and the people they affect.

Registration is required for both in-person and virtual attendance. Register at https://ncats.nih.gov/rdd.